Fibromyalgia - You're Not Alone!

A Community for People Touched by Fibromyalgia

Rudy
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Hometown:
New Jersey
Do you have fibromyalgia?
No
About me:
my name is Rudy. I have a disability called cerebral palsy and I am in a wheelchair. I am interested in learning about fibromyalgia and in being a valuable contributor to this community.
Website:
http://www.disabilityresourceexchange.com/
How did you find out about "You're not alone"?
from a forum post by the creator of this community

Rudy's Blog

Rudy

The fibromyalgia section of disabilityresourcelinks.com

I have created a section devoted to fibromyalgia on my website the address for that section is http://www.disabilityresourcelinks.com/fm/

This section is full of links to fibromyalgia news and resources any suggestions for resources I should add are welcome. I hope at least some of you find it useful

Posted on March 31, 2009 at 6:00pm —

Rudy

hello everyone I'm back!

Hello everyone how are you this community looks to be doing great I'm very happy to be a part of it. Sorry I have not been around at all for a while I've been working on building out a disability links and news directory website. I now have about 5000 links to disability and health related news and resources. You can visit the website at http://www.disabilityresourcelinks.com/

I will be around much more often from now on. I look forward to getting to know everyone and helping this community to… Continue

Posted on March 31, 2009 at 12:00pm —

Rudy

dealing with my second disability

I was born with cerebral palsy. I have had several operations over the years to keep my condition from getting worse. My last operation in 1996 went very badly and left me with severe chronic pain. My experience with chronic pain was like having a second disability. I had accepted and learn to live with having cerebral palsy and being in a wheelchair to the point where I was thankful for what my disability had given me in terms of a caring personality. I was very confident because I understood h… Continue

Posted on December 13, 2007 at 1:39am —

Rudy

rating and describing pain can be difficult

When you have a condition that involves pain doctors will often ask
you to rate your pain on a scale from one to 10. Especially when I first developed my pain I found this question to be exasperating. I just
knew I was in a lot of pain I had no concept of how to quantify it.
it was just as frustrating when the doctors ask me to describe my pain
they asked me if the pain felt like burning, tangling aching sharp etc... I had a very clear burning sensation in my feet but other then that I had a ver… Continue

Posted on December 5, 2007 at 10:30pm — 2 Comments

Rudy

hello :-)

hello happy holidays everyone. This is my first post in this community. My name is Rudy and I have disability called cerebral palsy. I am also in a wheelchair. I do not have fibromyalgia but I would like to learn more about the condition. I also hope I can offer some support to those people who do have fibromyalgia by finding some useful resources and posting them here. I hope I can be a valuable contributor to this community and help it grow.

Sincerely
Rudy

social network… Continue

Posted on November 23, 2007 at 5:26pm —

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