A Community for People Touched by Fibromyalgia

Khürt Williams 43, Male Princeton, NJ United States: Share

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Mahalo's Fibromyalgia Resources

Started May. 25, 2008

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Khürt

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Khürt Williams updated their profile photo

October 28

Khürt Williams left a comment for Tammy Renfroe

September 5

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July 20

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July 20

Ollie left a comment for Khürt Williams

July 18

Ollie commented on Khürt Williams's group 'Women with fibromyalgia'

Glad to see the group growing. I haven't been on here much. As you know my daughter has had 3 brain surgery for cancer and my heart has been with her.

July 14

Profile Information

Hometown:: Kingstown, St.Vincent and the Grenadines

Do you have fibromyalgia?: No, I have a friend/relative with fibromyalgia

About me:: My wife was diagnosed with fibromyalgia a few years ago. At first we (her family and I) thought it was just depression and she sought out a therapist. But gradually we began to realize that the depression was a symptom of something else. After a battery of test she was diagnosed with fibro, restless leg syndrome, clinical depression and a sleep disorder. Wow! All within three months. She survives on pain medication and weekly visits to a physical therapist, a psychologist, yoga, an acupuncturist, and playtime with her 11 month old nephew.

Website:: http://www.khurt.com

What sort of treatment do you use?: yoga, pain medication, accupuncture, physical therapy

How did you find out about "You're not alone"?: Founder

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What Is Fibromyalgia?

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Healing Fibromyalgia

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Former Fibromyalgia Sufferers Tell How They ended their pain

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Khürt Williams's Blog

Fibromyalgia Empowerment Program

This was sent to me and my wife from the Fibromyalgia group and New Fibromyalgia Empowerment Program at Atlantic Rehabiliation Institute in Morristown, NJ. If you are in the NJ area I hope you can make use of it.

Your body is designed to feel good and stay healthy. Because you are not just your physical body, you will learn how to engage and connect with your physical, emotional and spiritual self. By learning simple and pain free techniques, you can improve your health, sharpen your mind and… Continue

Posted on March 21, 2008 at 9:18pm — 1 Comment

When things go wrong

Busy afternoon. Bhavana has been off since about mid November. She has been in more pain than usual. The pain had gotten so bad that she was throwing up. Today we got her an appointment with her holistic doctor, Wendy King, PhD, APN, in her Somerset, NJ office. We were there for almost two hours but Dr. King believes that a few shot that Bhavana had at the beginning of November, plus the change in weather ( where knew that barometric pressure could affect health… Continue

Posted on December 11, 2007 at 8:53pm —

Difficult times

Bhavana has been wracked by major pain for the last few days. Last night she woke me in tears and all I could do was gently take her hand and wait. I don't know what to do. I feel completely useless. Today I offered to drive her to her physical therapy session but she refused and canceled. She thinks the increased pain is due to her menses. She recently changed birth control pills because the previous one had side effects.

Posted on November 28, 2007 at 1:08pm —

The morning after

Yesterday was Thanksgiving and my wife and my family were over at my home. As usual we had too much food and too much work. Bhavana (my wife), over did it with cleaning and helping my mom create meal items for my side of the family ( I am from the West Indies and Bhavana is from India ).
Today she is in bed, racked with pain ( and probably some regret ). She got up just a few minutes ago and stumbled over to the door and called to me. She needed her pain medication. She popped a handful of pills… Continue

Posted on November 23, 2007 at 11:21am —

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At 7:58am on July 20, 2009, Ollie said…: I went to get out of my chair and caught my foot on something and hit the floor. Going to the Dr. today since that toe has had about 5 surgeries on it.

At 5:43pm on July 18, 2009, Ollie said…: Been gone for a while, just wanted to say Hi, Sitting here with a broken toe.

At 5:09pm on March 19, 2009, Larry Payton said…: I'm brand new here, but I must say I am impressed. The site seems quite active and everyone has made me feel welcome. Congratulations on putting together such a vibrant and growing community.

Reading the story of your wife's fibromyalgia really hit home, too. My wife's illness also seemed to come from nowhere and escalate quickly over just a few months. It was truly a life changing event -for both her and me- but we've slowly managed to adjust to our new life situation.

Resources like this one can only help others who are faced with making the same life transitions.

At 9:39am on January 5, 2009, Rachel said…: Thanks for adding me as a friend. You asked how long I have had this, well since I was 31.I consider it a curse, it's ruined my life. The only thing good I have now is a new husband and a good relationship with my 2 daughters. My parents are also very understanding.
At the moment for me my health is getting worse.The pain I can shove to the back of my mind...almost but the reality of how crippling it can b is very frustrating and makes one feel like a cripple.

At 7:40pm on October 13, 2008, Mattie said…: I have not tried acupuncture. I live in a small town, I would probably have to drive to Nashville for the treatment. Does it help more people than not? Thanks for your suggestion.

At 1:40pm on October 13, 2008, Tina Bate said…: Hi. I tried acupuncture as my (former) physiotherapist was keen on it, but sadly, it did not work for me and just left me feeling out of sorts and grumpy with no relief of symptoms.

At 4:41pm on January 28, 2008, Coleman said…: Thank you for the warm welcome
it may take me a little bit to feel my way around in here.

At 8:19pm on January 24, 2008, Petra said…: Khurt,
I cannot imagine having someone around who cared as much as you do about your wife. It is rare and she is very lucky! My ex divorced me over this illness. He just thought I was crazy and a hypochondriac and now my sons are just as bad. They all just refuse to accept the reality of it. My mother had it as well, and was treated the same. She died with everyone and all her doctors thinking she was just a complainer. It is very hard having no support at all. NO help, no health care, no job, no nothing. A lot of us have lost everything because of all this. Those of you who are helping someone with this need to be ommended.

Petra

At 8:01pm on January 24, 2008, Ollie said…: Khurt,
Thank you. It is nice to meet people that know what you go through with when you have Fibro. My Aunt has had it for years and we talk a lots together then a friend at Church has
just found out she has it. Thanks Again.
God Bless.

At 5:27pm on January 6, 2008, Jeanette said…: Thank you for welcoming me here. I have had Fibro for so long now I think I have done it all. There was one time a doctor had me on 75 different medications and talking about being drugged out, but still had the pain and all that went with it. The doctor I have now has me on 10 now and I still have alot of pain and in fact have been flared since Thanksgiving. I am disabled now and can't work. Unfortunately I got this way before things started to help people that nothing works, but rest and sleep when the body says to do it know matter what time of the day it is. Weather kills me, too hot or too cold. So as you see warm only comes once in awhile and I have about 3 good months to get things done in and straighten things out that got messed up in my "Fibro Fog" My heart goes out to your wife and to you. It is tough and something that is hard to deal with for you because you see your wife in so much pain and for her to have to deal with it. Having a baby naturally is alot less painful!!! I am here if you need some support or help....I can do what I can do. Have a good day and tell your wife rest is the ingredients and a very soft fluffy bed and pillow.