A Community for People Touched by Fibromyalgia

All Blog Posts (44)

Sorry, I have been away a while

Well I have remarried and relocated to the Texas Hill Country. This has not been an easy move for me. I am also making a lot of changes in my life which should be much for the better. I have missed contacting you. I am trying to update my profile but it is not taking my info for some reason. Perhaps I will be able to soon. Continue

Added by Fitness By Marilyn on July 9, 2009 at 9:51am — 1 Comment

Hypnosis for Fibromyalgia

Hypnosis Reduces Tender Points in People with Fibromyalgia Monday, 11 May 2009 Researchers from the Unidad de Investigació Médica in Merida, Mexico, explored the efficacy of Ericksonian Hypnosis for managing the symptoms of fibromyalgia. Forty-three female fibromyalgia patients were randomly assigned to receive either six months of Ericksonian hypnosis (n = 20) or a sham-hypnosis protocol (n = 23). Each month, measures were taken using the Patient and Physician Global Disease Assessment, a cou… Continue

Added by Seth-Deborah Roth on May 21, 2009 at 1:36am — No Comments

The fibromyalgia section of disabilityresourcelinks.com

I have created a section devoted to fibromyalgia on my website the address for that section is http://www.disabilityresourcelinks.com/fm/ This section is full of links to fibromyalgia news and resources any suggestions for resources I should add are welcome. I hope at least some of you find it useful Continue

Added by Rudy on March 31, 2009 at 6:00pm — No Comments

hello everyone I'm back!

Hello everyone how are you this community looks to be doing great I'm very happy to be a part of it. Sorry I have not been around at all for a while I've been working on building out a disability links and news directory website. I now have about 5000 links to disability and health related news and resources. You can visit the website at http://www.disabilityresourcelinks.com/ I will be around much more often from now on. I look forward to getting to know everyone and helping this community to… Continue

Added by Rudy on March 31, 2009 at 12:00pm — No Comments

The New Fibromyalgia Drugs: Hype or Hope?

Just as in 2007 with Lyrica and again in 2008 with Cymbalta, the fibromyalgia community is abuzz in anticipation of Savella, the third drug approved by the FDA for the treatment of fibromyalgia. That this news should garner such attention is not really surprising given the level of involvement and sophistication among fibromyalgia patients, but we should always remember to temper our expectations with a bit of sobriety. A little rational analysis can tell us a lot about how these drugs were deve… Continue

Added by Larry Payton on March 20, 2009 at 6:00am — 2 Comments

Managing Fibromyalgia: 10 Things You Can Do Today to Regain Control of Your Life

Fibromyalgia is pervasive. If you or a loved one are afflicted, you already know this. Left unmanaged, it can take control of your daily activities, your thoughts, your sleep, and even your interactions with other people. Since fibromyalgia is a long-term chronic disease, most patients eventually come to the realization that it is better to be proactive than to allow further erosion in the quality of their lives. With that in mind, here are 10 things you can do today to start getting your life b… Continue

Added by Larry Payton on March 19, 2009 at 12:00am — No Comments

Logical Instant Cure for Fibromyalgia-Mystery Solved

After 9 years of suffering with major Fibromyalgia and chronic fatigue, I found an easy and logical cure. I went from doctor to doctor and they all prescribed pain medications but nothing worked. They made me try all types of medications. and they told me that my pain sensors were oversensitive, but of course none of this was true. Basically, my body has been deprived of years of deep reparative sleep! Years of non-reparative sleep is very damaging to the body, which causes overall body aches… Continue

Added by I was cured of Fibromyalgia - Wanted to share logical findings on February 22, 2009 at 8:00pm — No Comments

2/11/05 817 pm

this is the day 4 years ago that started on my ME/CFS/PTSD i was driving down us 41 in fort myers fla and a man ran in to the front right side of my pick up i turn to left but he fell out in to the road 3 lanes i set and watch him get hit 5 more times by cars driving down the road i was not on cell phone was sober for 11years 333 days yes 32 day before my 12 year of being sober there was 14 cops car from the city to the state police i was give a blood test i was not sited he was but in a bod… Continue

Added by Keith badger on February 11, 2009 at 3:11pm — No Comments

have the new benefite list

i m making my own path i now have the 2009 new ssa benefit and employment hand book the money you make now has gone up the new rate for the pass program and how to get a ssa claimant representative web site i will not go down a path that has been done before new way new begianing i went and pay for a new bikecyle today i have ME/CFS/PTSD/depresstion it no longer has me Continue

Added by Keith badger on February 9, 2009 at 10:02pm — No Comments

e mail the white house

i cant do this alone anymore (we the people) we canwork together andact as one WE can get money for ME/CFS/FM let not talk about lets do something as a whole i khow 5 people with ME/CFS and you know 5people we can as a whole get something done yes i have pain yes im tried all the time i play no part in my ME/CFS/FM/ let do something i can over ride thepain if i have a goal so i know what people with ME/CFS/MF can do we can e mail whitehouse.gov tell them your storys Continue

Added by Keith badger on February 6, 2009 at 12:33pm — No Comments

anyone single here lost it all

on feb 12 2009 i will lose everthing my car my cell and my place to live i keep my laptop unemployment in lee co fla. is at 11% i have S D C of fla to pay for meds my ME/CFS has taken everthing rom me friend jobs and a place to live i went from raising to sons to not being in the human race i was to have a SSDI court date in jan 2009 but its feb 2009 the homeless places all all fill up and lost my friends from my ME/CFS what next anyonebeen thru this? Continue

Added by Keith badger on February 6, 2009 at 10:54am — No Comments

We Lost My Son

Since I have been in contact, my oldest son in Dallas had a massive heart attack and died. You just don't expect to outlive your kids. This also has caused my pain to be worse at this time. Plus I had to go to Dallas and there has been much stress and lots to do. Continue

Added by Fitness By Marilyn on February 1, 2009 at 7:26pm — No Comments

Ready For Spring

Having recently moved to the Texas Hill Country, I am having a bad time. It gets much colder here and that causes my pain to be worse. I also have not been exercising like I was before. Last week I went down to the coast to do some cleaning and packing of my things to bring back with me. That was a killer for my pain but the climate was mush warmer and nicer. I would have felt much better except that I overdid myself lifting things and carrying them down stairs. I had planned to wait until someo… Continue

Added by Fitness By Marilyn on February 1, 2009 at 7:23pm — No Comments

where is my U S of A

my job gone my place to live is gone and my car is in need of repair and i been fighting SSDI for 2 years but i be homeless in the sunshine state what are we to do i raised 2 sons i worked from the age of 16 teen and now my U S of A iis giving billion to make cars what im i to do? Continue

Added by Keith badger on January 30, 2009 at 2:48pm — No Comments

i lost my mind body and soul

what are we to do now Continue

Added by Keith badger on January 26, 2009 at 8:34pm — No Comments

I can't get rid of this headache.

My symptoms have been getting so bad, I have had a headache for about two weeks. It's not just a headache, it's the worst headache that I've ever had, and the Doctor gave me hydrocodone and it only makes it feel better for a couple hours, and then it's back full force, and it knocks me out. I'm on a waiting list now to see a neurologist, but they said it would take two to three months to get in. Most of the doctors don't seem to believe in fibromyalgia, so do they think that I'm faking all of my… Continue

Added by Michelle on January 20, 2009 at 4:19pm — No Comments

back pain

I have recently restarted my lyrica for my pain but it is not helping my lower back pain. Does anyone have any tips? Continue

Added by marie on January 8, 2009 at 11:11am — No Comments

a new year already!!!!!

So far I'm hanging in there! Since reading it is better to stay busy than sitting when in pain, I have been doing just that! Tagar and I get in the golf cart and go for a ride. We have daily activities here in our trailer park which I try to attend. We are a happy group and enjoy each other! Hope all of you have a great New Year! Continue

Added by nancy on January 5, 2009 at 9:21am — No Comments

lyrica

i currently take cymbalta, thyroid, hormones, thyroid. i have had 5 back surgeries in the last 6 years. my back did not start this issue until after the first back surgery. i have recently been to dallas to se a dr john peloza. he came highly recommended. i went through all the gammit of test, i.e. mylogram, ct and mri, steriod injection. all results came back looking good which if great but very frustrating, since i have been dealing with this since 2002. i am married to the most caregiving and… Continue

Added by karen miller on October 29, 2008 at 3:11am — 1 Comment

haven't been on for a while

hubby and I have been stuck in NC for 3 months now! the change in the weather patterns is killing me! hubby has had pnem. and er sugery since we left FL on 6/30/08. 'we went to SC to care for our 6 yr old grandson for the month of july, we have yet to care for him. hubby got pnem and was in hospital 4 days, then had out patient surgery in NC and ended up with pnem and was in hospital 5 days. went back to SC to recoup then to daughter's in NC when we got a call our brother-in-law had passed in VA… Continue

Added by nancy on September 15, 2008 at 10:10am — 1 Comment