Fibromyalgia - You're Not Alone!

A Community for People Touched by Fibromyalgia

Blog Posts Across Fibromyalgia - You're Not Alone!

Shane Frisco Independant Research Project

In one month I have been out of work, have seen 8 doctors, made 2 trips to the hospital ER, had a CT scan (with contrast), X-rays (4 times) ultrasounds (twice), and coultless bloodwork. As a result I have learned that I have inflamed facia tissue, a cyst on my kidney, diverticulosis, low potassium, and high liver enzymes. While the aforementioned may prove to be useful information, doctors don't seem to suspect that any one of those are an explanation for my most recent symptoms (light-headednes… Continue

Posted by Shane Frisco on July 23, 2008 at 3:37am — No Comments

Shane Frisco Sleep Sleep Sleep

Throughout my quest for betterment it would appear as if nothing seems to work quite as well as a good night sleep, in terms of making life managable. Of course that's sometimes easier said than done, but so worth it if it can be done. Continue

Posted by Shane Frisco on July 10, 2008 at 1:30pm — 1 Comment

Jen Who am I?

I am a Mom living in Orange County, California. My husband and I share eight wonderful children. We have 5 girls and 3 boys ranging from 1 to 14 years in age. We have a busy life as a result and didn’t “have time” for me to develop a condition known as fibromyalgia. Check out my blog at http://happyfibrofamily.today.com to find out the latest in me. Continue

Posted by Jen on June 30, 2008 at 3:15pm — No Comments

nancy bad past few days

the pain seems to be getting worse so the doc upped my meds for the 1st time. it is helping but oh I am sooooo tired. hope I adjust soon to the new dosage. I have also put on more pounds, ugh! but my spirits are up and I trudge along. Continue

Posted by nancy on May 25, 2008 at 11:11pm — No Comments

Joanna When treating Fibromyalgia take tramadol with care!

When pregnant and suffering from Fibromyalgia it is important to know that the Tramadol (medication used to relieve pain) is in pregnancy category C. This means that the medication may be harmful to an unborn baby, and it may also cause serious side effects in a newborn if it is given to the mother during pregnancy or labor. Note, too, that Tramadol can enter a mother's breast milk and can therefore be make harm to a nursing baby. Continue

Posted by Joanna on May 15, 2008 at 7:08am — No Comments

Fitness By Marilyn The Benefits of Apples For Fibromyalgia

Apples are invaluable for Fibro patients who are short on malic acid. An excellent source of malic acid! The old addage still holds true, "An apple a day keeps the doctor away" See article below! Flavonoids in the fruit can help lower the risk of disease By Karen Collins, R.D. MSNBC contributor Updated: 5:55 a.m. CT Jan 19, 2007 If you look only at lists of fruits highest in vitamin C or read about the super health-promoting powers of the latest popular fruit, you might wonder if Grandma’s a… Continue

Posted by Fitness By Marilyn on April 13, 2008 at 9:11am — 1 Comment

Khürt Williams Fibromyalgia Empowerment Program

This was sent to me and my wife from the Fibromyalgia group and New Fibromyalgia Empowerment Program at Atlantic Rehabiliation Institute in Morristown, NJ. If you are in the NJ area I hope you can make use of it. Your body is designed to feel good and stay healthy. Because you are not just your physical body, you will learn how to engage and connect with your physical, emotional and spiritual self. By learning simple and pain free techniques, you can improve your health, sharpen your mind and… Continue

Posted by Khürt Williams on March 21, 2008 at 9:18pm — 1 Comment

William Sharing some good nutritional information

I wanted to share some information from a newsletter that my wife’s doctor sends out. There is a lot to read. I hope this will be helpful to you all. My patients with fibromyalgia/chronic fatigue have much more oxidative stress than the normal person. To bring this oxidative stress under control, my patients need to add what I refer to as “enhancers” to their cellular nutrition. Enhancer Grape Seed Extract Enhancers are added to this cellular nutrition to create more effective synergy and allow… Continue

Posted by William on February 13, 2008 at 3:49pm — 1 Comment

Petra Poetry and Taking care of business!

I have found lately that poetry of all things is helping me to undo some of the knots of my pain and my thinking. It doesn't come to me everyday, however once in awhile it just flows out and several poems will come at once. Especially when I am really down about something. Usually when I have been hurt by someone. Namely family. Unfortunately I must say. I guess it is just impossible for some people to handle the fact that I have all this going on healthwise and that I am NOT the person I onc…

Continue

Posted by Petra on February 11, 2008 at 12:05pm — No Comments

Fitness By Marilyn Americans Believe Love Affects Health

Just in time for Valentine’s Day: 6 out of 10 Americans believe love affects health

DALLAS — An American Heart Association poll reveals that most people feel Valentine’s Day romance and other relationships may affect health.

As part of its second The Power of Love fund-raising campaign, the nonprofit organization…

Continue

Posted by Fitness By Marilyn on February 2, 2008 at 8:00am — No Comments

Fitness By Marilyn Pilates May Have Saved My Life

How Basic Pilates Exercise Can Seriously Help You!

By Pilates Editor

Joseph Pilates, a German, invented the Pilates Exercise for himself because he was sick and asthmatic from birth and could not do the regular exercises like other kids. When he was arrested in France as an illegal immigrant he practiced Pilates Exercise while he was in prison.

Since then Pilates Exercise has become widely recognized as a way to improve physical health.

One of the basics of Pi… Continue

Posted by Fitness By Marilyn on January 7, 2008 at 8:10am — 1 Comment

Fitness By Marilyn My New Year's Resolution

My resolution for 2008 is to add POMEGRANATES to my diet! An ancient fruit which has been rediscovered!

Nutritional Benefits:

Pomegranates have very high content of punicalagins, a potent anti-oxidant component found to be responsible for its superior health benefits.

Amazingly, researches indicate that the capacity of anti-oxidant in this fruit is two or three times higher than that of red wine and green tea.

The level of anti-oxidant is even higher than thos… Continue

Posted by Fitness By Marilyn on January 7, 2008 at 7:39am — No Comments

Jeanette Found on a web page that I think fits most of us.......

A Letter From the Land of Fibromyalgia to the World of Normals


I have been diagnosed with fibromyalgia (FMS) after months, years or even decades of mysterious physical and emotional problems. Because you didn't know how sick I was, you may have thought of me as lazy, a malingerer, or simply ridiculous. If you have the time to read on, I would like to help you understand how different I am from you.


WHAT YOU SHOULD KNOW ABOUT… Continue

Posted by Jeanette on January 6, 2008 at 5:36pm — 2 Comments

Fitness By Marilyn National Fibromyalgia Association Updates

Fibromyalgia Network

* Education
* Encouraging
* Empowering

If you haven't visited the Fibromyalgia Network lately www.fmaware.org, there are many updates. The one of most interest to me was the new exercise videos.

Or go to:

http://myalgia.com

There are three new exercise videos with input by Dr. Sharon Clark, Dr. Robert Bennett and Janice Hoffman.
Continue

Posted by Fitness By Marilyn on December 16, 2007 at 9:57am — No Comments

Fitness By Marilyn Men Absolutely Can Get Fibro

The Doctor who diagnosed me had Fibro. I had been poked on all over and had batteries of tests. This Doctor just grabbed me by the elbow while talking to me and I nearly went through the roof. He said, "Well you've got it."

It seems to me that the Doctors or at least the best ones for Fibro are the ones who have Fibro themselves.

I once read that men with Fibro inherited the tendency. I think it comes from the mother's side of the family.

There are many books on the… Continue

Posted by Fitness By Marilyn on December 15, 2007 at 7:43am — No Comments

Rudy dealing with my second disability

I was born with cerebral palsy. I have had several operations over the years to keep my condition from getting worse. My last operation in 1996 went very badly and left me with severe chronic pain. My experience with chronic pain was like having a second disability. I had accepted and learn to live with having cerebral palsy and being in a wheelchair to the point where I was thankful for what my disability had given me in terms of a caring personality. I was very confident because I understood h… Continue

Posted by Rudy on December 13, 2007 at 1:39am — No Comments

Khürt Williams When things go wrong

Busy afternoon. Bhavana has been off since about mid November. She has been in more pain than usual. The pain had gotten so bad that she was throwing up. Today we got her an appointment with her holistic doctor, Wendy King, PhD, APN, in her Somerset, NJ office. We were there for almost two hours but Dr. King believes that a few shot that Bhavana had at the beginning of November, plus the change in weather ( where knew that barometric pressure could affect health… Continue

Posted by Khürt Williams on December 11, 2007 at 8:53pm — No Comments

Rudy rating and describing pain can be difficult

When you have a condition that involves pain doctors will often ask you to rate your pain on a scale from one to 10. Especially when I first developed my pain I found this question to be exasperating. I just knew I was in a lot of pain I had no concept of how to quantify it. it was just as frustrating when the doctors ask me to describe my pain they asked me if the pain felt like burning, tangling aching sharp etc... I had a very clear burning sensation in my feet but other then that I had a ver… Continue

Posted by Rudy on December 5, 2007 at 10:30pm — 2 Comments

Fitness By Marilyn Fibromyalgia Impact Questionaire (FIQ)

The Fibromyalgia Impact Questionnaire

The FIQ is free. You may use the FIQ without asking permission, but it is expected that you will reference it in any publication.

The reference is: Burckhardt, C.S., Clark, S.R., Bennett, R.M.: The fibromyalgia impact questionnaire (FIQ): development and validation. J Rheumatol. 18:728-733, 1991.

The Fibromyalgia Impact Questionnaire (FIQ) is an instrument designed to quantitate the overall impact of fibromyalgia over many dimensions…

Continue

Posted by Fitness By Marilyn on November 29, 2007 at 7:59pm — 1 Comment

Fitness By Marilyn First Drug Approved

Drug name: Lyrica (pregabalin)

Manufactured by: Pfizer Inc.

Approval date: June 21, 2007

Approved for: Lyrica is approved for treating fibromyalgia in adults who are 18 years and older. Pfizer has agreed to perform a study of the drug in children with fibromyalgia and a study in breastfeeding women.

How it works: Lyrica reduces pain and improves function in patients with fibromyalgia. The mechanism of action is unknown, but there is some data suggesting that it has…

Continue

Posted by Fitness By Marilyn on November 29, 2007 at 7:54pm — No Comments

Fitness By Marilyn FDA News Release

FDA News

FOR IMMEDIATE RELEASE
P07-107
June 21, 2007

Media Inquiries:
Susan Cruzan, 301-827-6242
Rita Chappelle, 301-827-6242
Consumer Inquiries:
888-INFO-FDA

FDA Approves First Drug for Treating Fibromyalgia

The U.S. Food and Drug Administration today approved Lyrica (pregabalin), the first drug to treat fibromyalgia, a disorder characterized by pain, fatigue and sleep problems.

Lyrica reduces pain and improves daily functions f…

Continue

Posted by Fitness By Marilyn on November 29, 2007 at 7:53pm — No Comments

Khürt Williams Difficult times

Bhavana has been wracked by major pain for the last few days. Last night she woke me in tears and all I could do was gently take her hand and wait. I don't know what to do. I feel completely useless. Today I offered to drive her to her physical therapy session but she refused and canceled. She thinks the increased pain is due to her menses. She recently changed birth control pills because the previous one had side effects.
Continue

Posted by Khürt Williams on November 28, 2007 at 1:08pm — No Comments

Rudy hello :-)

hello happy holidays everyone. This is my first post in this community. My name is Rudy and I have disability called cerebral palsy. I am also in a wheelchair. I do not have fibromyalgia but I would like to learn more about the condition. I also hope I can offer some support to those people who do have fibromyalgia by finding some useful resources and posting them here. I hope I can be a valuable contributor to this community and help it grow.

Sincerely
Rudy

social network… Continue

Posted by Rudy on November 23, 2007 at 5:26pm — No Comments

Khürt Williams The morning after

Yesterday was Thanksgiving and my wife and my family were over at my home. As usual we had too much food and too much work. Bhavana (my wife), over did it with cleaning and helping my mom create meal items for my side of the family ( I am from the West Indies and Bhavana is from India ). Today she is in bed, racked with pain ( and probably some regret ). She got up just a few minutes ago and stumbled over to the door and called to me. She needed her pain medication. She popped a handful of pills… Continue

Posted by Khürt Williams on November 23, 2007 at 11:21am — No Comments

Latest Blog Posts

Most Popular Blog Posts

Blog Topics by Tags

Monthly Archives

2008

2007

About Fibromyalgia - You're Not Alone!

Khürt Williams Khürt Williams created this social network on Ning.

Create your own social network!

The Fibro Experiment

Tips for fibromites

Does Mederma really work?

Is laughter really the best medicine?

Fibromyalgia - You're Not Alone! Badge

Spread the word. Get your own Fibromyalgia - You're Not Alone! badge for your website or MySpace page. (Get Code)

Get More Badges

© 2008   Created by Khürt Williams on Ning.   Create your own social network

Report an Issue  |  Feedback  |  Privacy  |  Terms of Service