Fibromyalgia - You're Not Alone!
A Community for People Touched by Fibromyalgia
Petra's Page
Profile
- Hometown:
- Northwest City
- Do you have fibromyalgia?
- Yes
- About me:
- I have a long and sordid history with multiple illnesses. I now know that I have had this since a small child, and my deceased mother had this also, but was never diagnosed. There is NO support group in my area, and my two sons are my only family. They live 3000 and 6000 miles away however and are not supportive of me at all , in any way. I have had to apply for disability and have not been able to work for 3 years. I was in a car wreck 2 years ago and now cannot walk or stand for any length of time. I am having trouble taking care of myself, and keeping up with normal activities like doing the dishes, cleaning etc. I really need a home health worker. I have no health care, and no money. Because I have Multiple Chemical Sensitivity DIsorder I cannot tolerate medications. Therefore, I have unrelieved pain 24/7, and no relief in sight. Exercise makes it 100 times worse. I am one of those that nothing seems to help. Alternative treatments have worked some in the past, but are expensive. Supplements , herbs and vitamins help some, but cost a lot of money to take properly. I am facing bankruptcy from all of this. I have found some relief of and on with some different kinds of treatments that are just now starting to be talked about. I would be glad to share these suggestions with anyone who is interested. Because of my inability to get help with mainstream medicine, I have done a lot of research over the years and came up with my own treatments. The trouble is being so ADD from the Fiberfog and trying to focus and stick to and maintain a schedule or program. It is easy to just give up and do nothing when everything you do hurts or exausts you.
I commend you for starting such a helpful website. I have not participated on any of the others yet. I have found that this can be a lonely disease, when everything drains you, it is easy to just withdraw and seek that cocoon.
Merry Christams!
Petra
- What sort of treatment do you use?
- prayer
- How did you find out about "You're not alone"?
- I was reasearching about fibro and costochondritis on the web and ran into a psychiatrists website and you were on it!
Petra's Blog
Poetry and Taking care of business!
I have found lately that poetry of all things is helping me to undo some of the knots of my pain and my thinking. It doesn't come to me everyday, however once in awhile it just flows out and several poems will come at once. Especially when I am really down about something. Usually when I have been hurt by someone. Namely family. Unfortunately I must say. I guess it is just impossible for some people to handle the fact that I have all this going on healthwise and that I am NOT the person I onc…
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Posted on February 11th, 2008 at 12:05pm —
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Khürt Williams
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I've always known I've been lucky with my husband & family being so supportive, but I guess I'm luckier than I even realized - I don't know WHAT I'd do without my meds! It sounds like you're living my worst nightmare right now - suffering, with no support system, no way to make a decent living and no meds. You are living proof of our desperate need for universal healthcare in this country!
There are no support groups in my area, either, so I can relate to that... There are about 15 people locally who have signed up as "interested" on Meetup.com, but no one wants to be the organizer. Makes sense, since most of us aren't fit to get out of bed much of the time. If I felt well enough to take on the responsibility of running a support group, I probably wouldn't NEED a support group!
It's very nice to meet you. Take care!
Do any of you exoerience these tremors?
Petra