A Community for People Touched by Fibromyalgia

Khurt's Page

Khürt Williams 41, Male Princeton, NJ, United States: islandinthenet; Share

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Videos (8)
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Call for Participants- Whole Health Therapy for Fibromyalgia Study

Replied Jul 8

Mahalo's Fibromyalgia Resources

Started May 25

Guaifenesin

Replied May 2

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Latest Activity

Khürt Williams replied to the discussion Call for Participants- Whole Health Therapy for Fibromyalgia Study Jul 8

Khürt Williams and Misty are now friends

Jun 17

Khürt Williams left a comment for Genevieve Jun 12

Khürt Williams commented on the photo redneck_golfcart Jun 3

Khürt Williams started a discussion called Mahalo's Fibromyalgia Resources May 25

Khürt Williams updated the event Fibromyalgia Empowerment Program May 21

Profile

Hometown:: Kingstown, St.Vincent and the Grenadines

Do you have fibromyalgia?: I have a friend/relative with fibromyalgia

About me:: My wife was diagnosed with fibromyalgia a few years ago. At first we (her family and I) thought it was just depression and she sought out a therapist. But gradually we began to realize that the depression was a symptom of something else. After a battery of test she was diagnosed with fibro, restless leg syndrome, clinical depression and a sleep disorder. Wow! All within three months. She survives on pain medication and weekly visits to a physical therapist, a psychologist, yoga, a holistic doctor, and playtime with her 11 month old nephew.

Website:: http://honeysweet.us

How did you find out about "You're not alone"?: Founder

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Khürt Williams's Videos

Healing Fibromyalgia Added by Khürt Williams
Former Fibromyalgia Sufferers Tell How They ended their pain Added by Khürt Williams
Movement for Life - Part III - Address causes of Fibromyalgia Added by Khürt Williams

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Khürt Williams's Blog

Fibromyalgia Empowerment Program

This was sent to me and my wife from the Fibromyalgia group and New Fibromyalgia Empowerment Program at Atlantic Rehabiliation Institute in Morristown, NJ. If you are in the NJ area I hope you can make use of it. Your body is designed to feel good and stay healthy. Because you are not just your physical body, you will learn how to engage and connect with your physical, emotional and spiritual self. By learning simple and pain free techniques, you can improve your health, sharpen your mind and… Continue

Posted on March 21st, 2008 at 9:18pm — 1 Comment (Add)

When things go wrong

Busy afternoon. Bhavana has been off since about mid November. She has been in more pain than usual. The pain had gotten so bad that she was throwing up. Today we got her an appointment with her holistic doctor, Wendy King, PhD, APN, in her Somerset, NJ office. We were there for almost two hours but Dr. King believes that a few shot that Bhavana had at the beginning of November, plus the change in weather ( where knew that barometric pressure could affect health… Continue

Posted on December 11th, 2007 at 8:53pm — No Comments (Add)

Difficult times

Bhavana has been wracked by major pain for the last few days. Last night she woke me in tears and all I could do was gently take her hand and wait. I don't know what to do. I feel completely useless. Today I offered to drive her to her physical therapy session but she refused and canceled. She thinks the increased pain is due to her menses. She recently changed birth control pills because the previous one had side effects.

Posted on November 28th, 2007 at 1:08pm — No Comments (Add)

The morning after

Yesterday was Thanksgiving and my wife and my family were over at my home. As usual we had too much food and too much work. Bhavana (my wife), over did it with cleaning and helping my mom create meal items for my side of the family ( I am from the West Indies and Bhavana is from India ). Today she is in bed, racked with pain ( and probably some regret ). She got up just a few minutes ago and stumbled over to the door and called to me. She needed her pain medication. She popped a handful of pills… Continue

Posted on November 23rd, 2007 at 11:21am — No Comments (Add)

Comment Wall (9 comments)

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At 4:41pm on January 28th, 2008, Coleman said…: Thank you for the warm welcome
it may take me a little bit to feel my way around in here.

At 8:19pm on January 24th, 2008, Petra said…: Khurt,
I cannot imagine having someone around who cared as much as you do about your wife. It is rare and she is very lucky! My ex divorced me over this illness. He just thought I was crazy and a hypochondriac and now my sons are just as bad. They all just refuse to accept the reality of it. My mother had it as well, and was treated the same. She died with everyone and all her doctors thinking she was just a complainer. It is very hard having no support at all. NO help, no health care, no job, no nothing. A lot of us have lost everything because of all this. Those of you who are helping someone with this need to be ommended.

Petra

At 8:01pm on January 24th, 2008, Ollie said…: Khurt,
Thank you. It is nice to meet people that know what you go through with when you have Fibro. My Aunt has had it for years and we talk a lots together then a friend at Church has
just found out she has it. Thanks Again.
God Bless.

At 5:27pm on January 6th, 2008, Jeanette said…: Thank you for welcoming me here. I have had Fibro for so long now I think I have done it all. There was one time a doctor had me on 75 different medications and talking about being drugged out, but still had the pain and all that went with it. The doctor I have now has me on 10 now and I still have alot of pain and in fact have been flared since Thanksgiving. I am disabled now and can't work. Unfortunately I got this way before things started to help people that nothing works, but rest and sleep when the body says to do it know matter what time of the day it is. Weather kills me, too hot or too cold. So as you see warm only comes once in awhile and I have about 3 good months to get things done in and straighten things out that got messed up in my "Fibro Fog" My heart goes out to your wife and to you. It is tough and something that is hard to deal with for you because you see your wife in so much pain and for her to have to deal with it. Having a baby naturally is alot less painful!!! I am here if you need some support or help....I can do what I can do. Have a good day and tell your wife rest is the ingredients and a very soft fluffy bed and pillow.

At 10:26am on December 25th, 2007, Manny Hernandez said…: I would suggest revisiting the home page layout a little bit:
-Making the "You'Re Not Alone" box more prominent, perhaps #1 spot in the middle column.
-I would remove the gadgets component (for now), until there are more gadgets that you can apply to the network.
-I would make the Photos more prominent (middle column) and closer to the top. It will bring in a LOT of the human touch that you need to have in the network.
-Members are probably better located on the left column, closer to the top.
-Activity: reducing the number of recent items to show, and perhaps moved to the left.
-Blog posts, moved to the middle, at about the same level.
-Forum, moved up and adding a few more "recent comments" to display.
-Groups: same column, but a bit further down.

Things to clarify:
-The Wholeness feed is not completely clear as to what it is about and how it relates to fibro.

Besides this, I would say it's a LOT about continuing to get the word out about the network: YouTube, Yahoo! Answers, etc.

Hope this helps, my friend!

At 1:48pm on November 28th, 2007, Fitness By Marilyn said…: One thing that gives me quick relief is hot water. Either shower or heated pools. Massage is great and some ointments with pain meds or cayenne.

At 12:08pm on November 28th, 2007, Fitness By Marilyn said…: Your site is looking good. And it is a good cause. I am sorry that I have not been able to work on my page yet but hope to do that soon. Marilyn